Fondation Ipsen support projects of general interest in science, education, disability and health, with a particular focus on the early detection and care of rare diseases.
We Learn
Fondation Ipsen works to integrate the voices of patients and experts to address the real needs of the rare disease community:
- Webinars with Science: bringing together rare disease patient voices and insights from international experts.
- Needs Assessment: surveying 45 organizations to analyze the impact of rare diseases on families with affected children
We Do
The Foundation promotes inclusion, collaboration, and innovation for a durable and meaningful impact on the lives of individuals affected by rare diseases:
- Fondation de France Working Group: sharing expertise among foundations focused on rare diseases
- Court Devant Film Festival: supporting collaborations between artists and people with disabilities to create short films
- Young Caregivers Respite Programs: organizing breaks and peer support for young caregivers
- International Innovation Conferences: partnering with UCSF, LaunchBio, NPF to drive progress
We Teach
Fondation Ipsen publishes and distributes books to raise awareness and educate diverse audiences about rare diseases. These publications are freely available in print and digital formats, ensuring equitable global access to reliable information.
